Meneroka Cabaran yang Dihadapi oleh Ibu dalam Menguruskan Anak Berkeperluan Khas : Exploring the Challenges Faced by Mothers in Managing Children with  Special Needs

Manisah Mohd. Ali; Nur Farahana  Ismail @ Mohd Ismail

doi:10.33102/jqss.vol4no2.86

Authors

Manisah Mohd. Ali Universiti Kebangsaan Malaysia
Nur Farahana Ismail @ Mohd Ismail Universiti Kebangsaan Malaysia

DOI:

https://doi.org/10.33102/jqss.vol4no2.86

Keywords:

Ibu, Anak Berkeperluan Khas, Cabaran, Tekanan

Abstract

Parents of children with special needs experience mental and physical challenges that can cause psychological stress. Mothers are more likely to experience higher stress than fathers as they closer to their children than father. This study aims to explore the challenges that can cause stress among mothers with special needs children. The research design of this study was a case study using an interview protocol to seek information from a group of mothers (n = 6) of children with special needs who are experiencing autism spectrum disorders, cerebral palsy and attention-deficit/hyperactive disorder. Data were transcribed verbatimly and analysed using the Thematic Analysis Method. This study found that there are five challenges faced by the study sample namely challenges in terms of lack of knowledge in the stages of identification of child disability, family acceptance, social stigma, emotional stress and career management in addition managing special needs children. Cooperation and collaboration between several parties such as counselors, hospitals and ministries are needed to ensure the well-being of mothers. Mothers need to be provided with detailed information on the management of children with special needs. This study has implications on Government agencies’ effort to design educational module on effective parenting.

Abstrak

Ibu bapa dengan anak berkeperluan khas mengalami cabaran dari segi mental dan fizikal yang boleh menyebabkan tekanan psikologikal. Golongan ibu lebih cenderung untuk mengalami tekanan yang lebih tinggi disebabkan mereka lebih mendampingi anak mereka berbanding bapa. Kajian ini bertujuan untuk meneroka cabaran yang boleh menyebabkan tekanan dalam kalangan ibu dengan anak berkeperluan khas. Reka bentuk kajian ini adalah kajian kes yang melibatkan protokol temubual untuk mendapatkan maklumat daripada kumpulan ibu (n=6) yang mempunyai anak berkeperluan khas dalam kategori gangguan spektrum autisme, palsi serebral dan sindrom kurang daya tumpuan dan hiperaktif. Data kajian ditranskrip secara verbatim dan dianalisis data dengan menggunakan kaedah Analisis Tematik. Kajian ini mendapati bahawa terdapat lima cabaran yang dihadapi oleh sampel kajian iaitu cabaran dari segi kurang pengetahuan pada peringkat pengenalpastian jenis ketidakupayaan anak, penerimaan keluarga, stigma masyarakat, tekanan emosi dan pengurusan kerjaya di samping menguruskan anak berkeperluan khas. Kerjasama dan kolaborasi antara beberapa pihak yang bertanggungjawab seperti kaunselor, pihak hospital dan kementerian diperlukan bagi memastikan kesejahteraan para ibu. Para ibu perlu disediakan maklumat yang terperinci berkenaan pengurusan anak berkeperluan khas. Kajian ini mempunyai implikasi kepada agensi kerajaan yang berwajib untuk merangka modul pendidikan keibubapaan yang berkesan.

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